A data infrastructure offers the integrated solution for handling scientific data, intended to unburden investigators, and to enable them to make optimal use of the diverse capabilities of IT technology. This envisioned infrastructure has many forms: it comprises an online catalogue of samples in a biobank, a standard method with which data in an Electronic Health Record is made available, privacy regulations, overviews of IT organisations at UMCs, a manual for ‘data stewardship’, a generic way in which data can be exchanged, or an expert who supports an investigator with data issues. The foreseen high quality data infrastructure Data4lifesciences will thus not only consist of technical facilities, but also comprise systems and processes for assuring quality, and have the requisite expertise of investigators and administrators.
Data4lifesciences will assure administrative coordination so that local facilities and expertise networks will be in line with national and international infrastructures and vice versa. You will be able to find information on questions like: