The NFU encourages all researchers to collaborate with partners to improve the quality, quantity, and real-world relevance of research data. When possible, involve patients or patient organisations in your research.
Patients and patient organisations can often help:
This should start at the design phase and continue throughout your study and after your study's completion.
For inspiration, you can consult BBMRI-NL. The donor as partner. How to involve patients and the public in the governance of biobanks and registries.