b. Making of HANDS

This second, updated version of HANDS (version 2.0, 2018) was written by a small team of the NFU Data4lifesciences programme.

It contains updates because of:

  • new laws and regulations that came into effect;
  • new insights into what issues an NFU (or UMC) policy on data stewardship should address;
  • new answers to frequently asked questions, as a result of debate and progress made on this subject at UMCs, universities and other organisations in which several HANDS authors actively participate, such as the Landelijk Coördinatiepunt Research Data Management (LCRDM), the Dutch Techcentre for Life Sciences (DTL) and Health-RI;
  • new developments in policies, tools, infrastructure and architecture at UMCs and universities.

Experts on specific subjects were consulted and feedback from researchers and support staff at UMCs was collected before publishing this digital version of HANDS 2.0. For the section ‘Credits’ we made grateful use of the website of University of Utrecht.

Redactie (2018):
Paula Jansen
Petra van Overveld
Linda van den Berg

More information

 

http://data4lifesciences.nl/

Frequently Asked Questions

The first version of HANDS was written by members of the NFU data stewardship committee in 2014-2015 as part of the NFU Data4lifesciences programme. The preliminary first version was shared with all Dutch UMCs and a large number of national organisations during a consultation round in September 2015. The deans of the eight UMCs were requested to at least share this preliminary document with their local Security officer, Privacy officer (Data Protection Officer), Research Policy Advisor(s), several researchers, and several ICT specialists.

Editors (2015)
Linda van den Berg – Washoe Life Science Communications
Paula Jansen (secretary) – Erasmus MC, UMCU

Authors (2015)
Peter Doorn – DANS, KNAW
Rob Hooft – DTL
Evert van Leeuwen –Radboudumc
Leendert Looijenga – Federa
Barend Mons – DTL, LUMC
Arnoud van der Maas –Radboudumc
Ronald Brand – LUMC
Morris Swertz, Jan Jurjen Uitterdijk, Pieter Neerincx – UMCG
Jan Hazelzet, Linda Mook – Erasmus MC
Thijs Spigt – TTO, Erasmus MC
Evert Ben van Veen – MedLawConsult
Margreet Bloemers – ZonMw
Jan Willem Boiten – CTMM-TraIT
Cor Oosterwijk, Tessa van der Valk – VSOP
Jaap Verweij (chairman) – Erasmus MC

The following organisations were consulted:
Centrale Commissie Mensgebonden Onderzoek (CCMO);
Center for Translational Medicine (CTMM-TraIT);
Dutch Techcentre for Life Sciences (DTL/ELIXIR-NL);
Nederlands Normalisatie Instituut (NEN);
Nictiz;
Nederlandse Patiënten Consumenten Federatie (NCPF);
Parelsnoer Instituut (PSI);
Samenwerkende Gezondheidsfondsen (SGF);
Vereniging van Universiteiten (VSNU);
Landelijk Coördinatiepunt Research Data Management (LCRDM)
4TU Datacentrum (4TU/SURF);
NWO;
BBMRI-NL;
Data4lifesciences programme committee and operational board.